Thursday, September 8, 2011

Going Yellow for Faith Fulmer!

Last week I posted up the story of Ethan Jostad. This week I am going yellow for Faith! Faith is a beautiful Warrior Princess. She is staying as strong as her little body can while she pushes forward.

Here is her story as told by her mother on Faith's Facebook page.

"Faith was 7 years old on April 19th when she was diagnosed with Osteogenic Sarcoma in her left deltoid and shoulder. She started Chemo at Doernbecher Children's Hospital, but the chemo didn't work. The tumor grew and we were told her arm would need to be amputated. Two days before that was to occur, Dr. "Chappie" Conrad of Seattle Children's Hospital did a limb salvage surgery and saved her left arm from just above the elbow down through her hand. She has 'medical play-doh' for a left shoulder and a ceramic encased steel rod in her upper arm. She continued her chemo at Doernbecher until the protocol ended January 2011.

On April 15th, 2011, she was diagnosed with metastatic lung cancer, and had lung surgery on both May 3rd and May 23rd, 2011. At the beginning of July, 2011, her cancer again metastacised to her left lung - the upper lobe has a 4cm+ tumor in it that grew in 4 weeks and cannot be removed at this time, as it is wrapped around the pulmonary vessel.

We were flown to Doernbecher on Monday, July 18th, after a weekend in our local hospital, where it was discovered that she had a pleural effusion (liquid between the left lung and chest wall.) At Doernbecher, they began by draining 1/2 liter of fluid from her chest. She also had a mass on her jaw that it took several weeks to figure out - the final answer was Osteogenic Sarcoma in the soft tissue wrapped around her left mandible. She started a new chemo protocol for metastasis that has a published 30% response rate. She was also given 5 high doses of radiation, for palliative care, hoping to reduce her pain and possibly shrink the tumor. They again needed to drain her chest cavity that had built back up, this time taking 1.75 liters of fluid and leaving in a chest tube. After one round of chemo, and both the mass in her jaw and chest growing, we stopped the chemo as it obviously wasn't working. It's still undetermined whether or not the radiation worked. Her jaw and cheek are still extremely swollen at this point - the last radiation was Friday, August 5th.

We were told that at this point, because her cancer has been resistant to everything, the doctors they believe she has anywhere from 4-6 weeks left with us. They did discover a 'mutated gene' in the biopsy from her chest that has not been seen before (or not discovered) in Osteogenic Sarcoma patients. She would be eligible for a clinical trial 2-weeks after discontinuing radiation, if she is ambulatory and not oxygen dependent. This gene is one that is seen in adult lung cancer patients, but has not been tried on pediatric Osteo patients. Time and the good Lord will let us know if this is meant to be. We were told that this would not be a "cure" but if it worked at all, might just prolong the inevitable.

We were flown home today and Faith will be on hospice care until/unless we are led down a different path. We ask that you encourage, support and pray for our sweet Warrior Princess as she continues to battle for her life."

Faith's Friends is the facebook page and everyone should go like it! You guys should leave this beautiful little girl lots of prayers and love. She is also wanting postcards from all over! Greeting Cards work too. Her birthday is coming up in October, but since she may not be here with her family then they had an early birthday party for her so birthday cards and such would be great as well! Her family (just like Ethan Jostad's family) has started working on a foundation as well in Faith's name to help battle childhood cancer and raise awareness.

Also as Faith's story mentioned she was told she has 4 - 6 weeks left to live. It has been 5 1/2 weeks since her family was told this. This little girl is a true warrior who continues to push forward and battle the beast inside of her body to hold on to one more day.

Please be aware and help others be aware!

Remember to hold your children close and love them every second of the day. You never know what tomorrow may bring.






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